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"Twisted & curved... I like that in a person"

Scoliosis Nutty

Simone Icough - Stryker Frame

The bed has 2 arm rests, a pillow for my feet and one for my head. I cannot lie on my side only on my tummy and my back, my tummy hurts when I get turned onto it. When I do get turned they put a mattress on top of me first. When getting turned from my tummy to my back it takes three seperate pieces because I can only go to the toilet on my back.

That is different for boys. For boys the middle piece doesnīt need to come out for them like it does for girls. To be turned everything has to be removed and then replaced when I am on the other side. This means my arm rests and pillows have to come off and then go back on.

Simone on Stryker Frame

I look forward to being turned onto my back but not the other way. In the morning and the evening we get washed by the nurses. I cannot sit up or it will damage my spine or put the Harrington Rod out of place.

Simone on Stryker Frame

In my back I have 2 rods. 1 Big one and 1 Small one. The big one is on the left and the small is on the right. The big one is the Harrington Rod and the small one is a stabiliser. My spine has improved to 27%. That is good because before when I had my hump it was 76% and that is really bad.

The operation is very serious because each patient that has the operation has 4 tubes. No other operation that I have seen since I have been in here has had tubes.

I enjoyed it in hospital but I missed all my school friends, my teach Miss McNulty, people at home in Jersey but I had to put up with it.

Simone on Stryker Frame

I also had pain I didnīt enjoy which meant I just couldntīt sleep. At this moment I canīt add anything about my plaster cast because I am lying on my stryker frame being bored. It is nearly lunchtime and I am not hungry.

Oh!! I have a plaster stuck on my back. I have 3 lots of stitches, 1 big one stuck down the middle of my back and 2 small oneīs where my hips are. I am not allowed to touch them but somebody else can very gently. When I am on my tummy it hurts to move my arms. When I am on my back, if try and scratch myself it arches my back which moves it. I can put my hands behind my head sometimes and it is really nice to get rid of my pillow.

At this stage on the stryker frame I am getting really restless. I just donīt want my legs but I need them, plus I am really lucky to have them, but the physio told me not to move them as much as I did but I just cannot help it.

Simone on Stryker Frame

I will now go on and explain the tubes. Well the night or day I canīt remember exactly, I woke up from the anaesthetic, I remember seeing and feeling pain from a tube up my bottom, 1 up my nose, 1 in my hand and 1 in my thigh. These hurt a bit but not a lot (because of the morphine no doubt), it was a funny feeling apart from the one in my thigh, this one really hurts.

Written by Simone Icough age 12