Our Members Stories
Ackley4
I am the mother a 14 yr old girl who has just been diagnosed with ais. We are going to start immediate pt and then be reexamined. I do not anything on this disorder or treatment,exercise, or basically any information I can access. Our family would like to do all the changes we can to correct this i ...
Actholy
My name is Angela i am new to this group,very glad i found it. I had scoliosis surgery when i was 11 my curve was around 60,was straightend to a 23 and now after all these years im back to a 42 im 31 years old i'm married,I have 4 children.I have alot of lower back pain now,I also have the degenerat ...Ada Jane Pearson
I had fusion for lumbar AIS in july 1981 Harrington rod inserted this rod started to bend at the top and one of the hook at the top came away. I had to have a replacement rod four months later in nov 1981. The replacement rod had to removed at end of jan 1982 the hook at the bottom came away. Th ...
Angelsarehome
At 14 had harrington rod put in at Shriners Hopsital of Philadelphia(1984). I was fine until I had my son in 1987, he broke the bottom hangy part of my spine because he was huge (8lbs 8oz- 23"long) Went back to Shriners and they said it would be fine but I couldn't come back there anymore because I ...Cadams
I have 2 harrington rods and 11 fustions. Operation I had when I was 12 years old. I havve flatback syndrome and many problems now. I am having alot of pain in my lower back and my neck. I am looking for other people with this problem. The doctor wants to fuse my neck in three places. I don't ...Carmina1uk
I've had a scoliosis of the spine since I was seven diagnosed after falling over the banisters and surviving a three flight drop. I discovered much later in life that it is hereditary. Both my parents have it in their family trees. My mother's appears after fifty while my father's appears in early c ...Ciaramissa
I'm 13 have a 45 lower curve 41 upper curve.Getting brace in a few days.In 6th grade school noticed curve but said it was no big problem but 7th grade they said I should go to a doctor.Scoliosis runs in my family some of the older generations are getting scoliosis surgery. I have back pain it's ann ...Dukercook
I presented with concentrated back pain. They found mild scoliosis and schmorls node.Emma26
I have congenital scoliosis. I do not know a lot about my condition because i have not seen a specialist since i was young. i have been referred to see a specialist in Cardiff because my pain is getting worse.Geezerlaw
Brace ages 11-16. Harrington Rods at 16. surgery to remove part of a rod that became dislodged and to do some "clean up" work on spine at 30. Have flat back syndrome - major pain now at 42.Guylaine
I had surgery in may of 1982. I was 13 years young. Since then everything went preety good.I have 2 young boys now.Did not have any problem with my back so for. but for the last year or so iI feel some changes. I want to find a doctor so I can find out if there is somes changes or/and why!??
Haolemike
I've been aware of my scoliosis since my early teens. I've been fortunate in that it hasn't restricted my activities very much, and I haven't had to have surgery, so far. As I get older (now 61), the curves are progressing, and discomfort/pains are increasing, but so far so good. I don't know what w ...Izzypocus
I was formally diagnosed with scoliosis in 2001, at the age of 17, even though I had told my mom years ago that my spine was crooked. I went to the chiropractor with a history of headaches, and ended up treating the scoliosis. I also have a congenital cervical fusion (KFS) in c-2 and c-3. In augu ...Kimmie79
I had Harrington rods placed when I was 14 years old, I am now 25. Just interested in the subject.Lauren
My story started in 7th grade when my school was screening for scoliosis. I was told I had about a 15 degree curve and that it should be monitored yearly with x-rays. For whatever reason I didn't get back for 2 years and next thing we knew the curve was about 30-35 degrees. I was braced to see if th ...Leebauer04
I had first fusion (lumbar) at 14 yo. injured fusion in 1993 and now i am fused from t3 through my sacrumLISA
I had an x-ray when I was 16 showing a 20 degree curve in the spine and I had stopped growing so nothing was ever discussed for treatment. I went on with my life, but about 5 years ago, at the age of 36, I started having pain in what I thought was my hip. I have continued with my job but have fou ...
Liz
I was born with Scoliosis. I had a milwaukee brace from the age of 4 1/2 to 10 years then had a Harrington rod fitted in Edinburgh at the age of 10 years. I had a further operation 6 months later to check that the spine had fused, luckily it had. After my rod was fitted I wore a plaster cast for 6 m ...
Lizle
Story to followLjrgomez
Now 11 weeks post surgery.I am 55, British, diagnosed with adolescent idiopathic scoliosis in the mid-60s when I was 13. Partly because my parents were busy and fraught, and partly because the consultant must have been anti-surgery, the message was that there was nothing that could be done, although ...
Llweyn
My family doctor first noticed my scoliosis, in the thoracic region, when I was 8 but nothing was said to my mother about it being treatable at that time. A year later, when I had to see my doctor again about a very bad sunburn/blister, he was upset that my scoliosis wasn’t being treated for it was ...Lori
Adult onset found at age 19 or 20. Constant pain, muscle spasms.Marit
I am a 50 year old woman from Norway. I was diagnosed at the age of 4-5, and got my first corset made of plaster. Then I got Blounts brace and in the end Milwakee. My curves are now 70 and 80 and some degrees. It can luckely only been seen without clothes! I have hade almost daily headaces since ...Marti
I discovered my own scoli at age 10 when I looked in the mirror and noticed the diference in my waist and hips. Many things were tried including the milwauke brace but I continued to progress. At age 37 my orthopedist told me that new things were being done to help patients like me ( severe trippl ...Mickeymouse
*from an asult* i have a few disabilitys, but as for scolsiosis, it was about 7ish years ago from an asult that i have it now as time gos on other things are hapening *im making a lot story short*Nbeacham
Hi my name is Andrea and I have been to neurosurgeons, neurologist, orthopedics and all I get is bounced back and forth and told I'll have to learn to cope with this pain that I have. I'm told I have what is known as a Flatback. I can't find anyone who can help me. Does anyone have ...Olwyn
daughter with IP awaiting sugery summer 2005Retterath
interested in ozone therapy for discs.Rhian
I am a Midwife from the Uk with a 3 year old niece with a 76 degree idiopathic scoliosis. (Her mother and uncle also have scoliosis but it is apparently not hereditary). My niece Amber has had a brace for about 3 months since diagnosis just before her 3rd birthday in June 2006, and had an appointmen ...Rosemary Wolkon
Intense back pain increasing over the years. Am now almost 65, and realize that I have shrunk about 4 inches in the past 6-7 years or so. Treatment mostly various types of typenols, to ibuprofens. to naproxyns, to real pain pills, none to much good for more than an hour or so. And on and on it goes ...
Scoli Oli
I've had scoliosis since I was in my teens, never treated. My daughter has it too and is recovering from recent surgery.Shirleyroselite
I have cervical, and lumbar disc problems[degeneration and herniation], scoliosis, and arthritis. I also have Addison's and am looking to alternatives to risky operations.Spiney
Congenital spondylolithesis, fusion L4/L5 1970, anterior/posterior fusion with instrumentation (cage, rods, screws) L3/L4 2000Susan Kriel
My son of 14 years and 11 months has just been diagnosed with Scheuermann's Disease. I do not as yet know much about this and am trying to find out more. He has acute and constant pain in his left, upper back. He is a keen sportsman.
Susannajon
My daughter is 14 and she has idopathic scoliosis. She was diagnosed at ten. Before surgery, her "S" curve was 40 degree thoracic from T3 to T9, and a 70 degree rotatory thorcolumbar from T9 to L4. She was operated on March 9th, 2005 by Dr. Boachie-Adjei at the Hospital for Special Surgery in New ...
Susie
I was born with Cerebral Palsy and recently was diagnosed with Neuromuscular Scoliosis. When did I know I had Scoliosis you might ask, well I think it was about four years ago by mistake really. I remember being at work and I moved to get something from my desk and my back locked which was very pain ...
Suzanne
MY son Samuel is 18mths old he has congenital scoliosis and has fusion of the ribs. He has butterfly and hemivertebra in both the cervical and thracic regions. his mri scan showed the scoliosis to be upper thoracic scoliosis to the left side of the body of t3 inferiorly. At present there is nothing ...Swan
I am 23 years old, female. I was diagnosed with scoliosis as a child, approximately 9 years old. The reason for my condition is unknown; this is what people call Idiopathic Scoliosis. Since we found out I suffer from Scoliosis we decided I should exercise and swim in order to minimise the curve and ...Theizzard
The first any noticed I had a curve in my spine I was probably 40. A doctor was examining me and said do you know you have scoliosis. i didn't even know what it was. That was 17 years ago. 3 years ago i had a 3 level 360 fusion at l2-l5 because I had excrutiating leg pain and no stability from ...Tripple M
My Story Hi I'm Morgan , and I have idiopathic scoliosis. I was diagnosed with this condition five years ago,and today I am fifteen.When my mom notice that I had scoliosis she brought me doctor right away , whe ...
Victoria
I am from NZ. When I was 15 I was playing netball and got pushed over and hurt my back. I then went to the GP for a comletely diff thing - to get my iron levels tested, and then my mum mentioned I had hurt my back. he thought he should check it out, so he looked at my back and said, how long has it ...