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"Twisted & curved... I like that in a person"

Scoliosis Nutty

My Story By Hazi Simone

Members Stories
Hello all! I am super excited to find this group on facebook. I am tearing up as I type. I am two months shy of 34 yrs old and was diagnosed with moderate to severe scoliosis at about nine yrs old. I 
have an 'S' curve and at that age the degree of curvature was in the thirties. The doctors sized me for a brace and as I wore it, I became depressed and stressed. I was at a critical age of developing 
my own self image and I rebelled against the thought of the disfigurement, that looked to be my future. I began to break out in a rash when I wore the brace and convinced my mom that I would never 
wear it again. And I didn't. What a horrible decision that was!

In the years to come I did not educate myself on what to expect as I aged or carried my son. When I entered my thirties, I decided to visit the Orthopedic specialist and see how my curve progressed. I have a degree of curvature in the forties now. My saving grace is that my neck, shoulders and hips are aligned. But the middle is one big 'S'.

In all these years, I never reached out to other people with scoliosis. But it does my heart good to see all of you on here and have the opportunity to discuss the struggles of traveling in a body 
that is twisted. My shoulder blades are messed up, as well as my rib cage and breasts. This is difficult to deal with on so many levels.

I face my future knowing that at some point I may have surgery. I wonder how surgery changes things, in negative ways. Range of motion? In intimate situations? As the body grows or ages? I am grateful 
to have this venue for discussion! I look forward to sharing! I hope to post my X-rays later as soon as possible. Blessings to you all!